When my daughter was diagnosed with a disability, I was as surprised as anyone. I had a healthy pregnancy, she was born full term and I had a healthy two-year-old son. So, life for me was normal and I had no real reasons to be worried. That is, until I started to notice that something about my baby girl was not quite right. At first, there were little things. While she seemed perfectly healthy at times, there were other times when she seemed dazed, confused, unaware and hardly able to stay awake. Her symptoms were inconsistent from one hour to the next. The inconsistencies caused me to question my concerns. Was I observing some sort of medical problem or looking for something that simply did not exist? I recorded my observations and consulted with doctors for months until one day, she had a horrible seizure. It was then, I started to understand some of her symptoms. I remember wishing I had an avenue to ask question and hear what others, more familiar with this situation had to say.
So, I decided to create that avenue and write this book. The book is about my experiences and the experiences of over 500 parents and caregivers who collectively are experts in how to achieve the best outcome for their child. The book allows “new” parents on this journey to hear from “not so new” parents about how to cope with the challenges of this experience.
I am inspired by others as I travel the country speaking at schools, parent groups and professional seminars about the challenges, successes and the seven things to know as you care for, teach, coach and love a child with special needs.
Whether your journey has just begun, or you have been on it for a number of years, I hope that you join in our conversation and become part of the Dr. Nancy Community.
Contact Dr. Nancy if you'd like to tell your story and possibly be included in future publications